Last Wednesday we
went to the ALS Clinic. When we go there, we stay in one room and different
specialists come in and talk to us. We see a doctor, a physical therapist, a
speech therapist, a dietitian, a pharmacist, a respiratory therapist, and
representatives from the ALS Association and the Muscular Dystrophy
Association. (It takes most of the day.)
Alan, Roberta, and I all went.
They are very helpful and professional, but sitting in one place and answering
a whole bunch of questions can get a little monotonous, unless you make your
own fun. Someone came in and asked if I ever laugh inappropriately. (Apparently
ALS can make you laugh and cry when you shouldn't.) I took one look at Roberta
and started to giggle. I probably didn't need to even answer after that, but I
said with my computer, "Yes, but I always have."
Roberta has been incredibly
supportive to me, and this time she backed me up with a story. We bought a car
to share after we graduated from college. We wanted to save money, and we found
that a car with a clutch was cheaper than a car with an automatic transmission.
I didn't know how to drive a stick shift, but Roberta did and she said she
would teach me.
When it came time for my first
lesson, we went to a little country road where we didn't think there would be
any traffic. Everything went smoothly until we switched seats and I started
driving. Then it was time to go up a hill with a stop sign. I couldn't figure
out how to get the car to go again after I stopped! Suddenly, a car was behind
me! That really added unwanted pressure! I'm not exactly sure how it happened,
but we ended up in a ditch! That's when I started laughing. Actually, I think crying
or swearing would have been worse. The people behind us were very nice. They
helped push us out of the ditch! For some reason, Roberta decided that she
didn't want to teach me how to drive a stick shift after all!:) Roberta drove
home. Aunt June was there, and she offered to go driving with me. I thought
that was very kind, but by that time I felt like I'd do better if I wasn't
worried about scaring someone else. I went back out and taught myself how to
drive a stick shift.
When I was asked if I ever laugh
inappropriately, my mind went to an entirely different experience. I thought of
a time when we were in a junior high school German class. Neither Roberta nor I
liked the teacher. We thought he was partial to the boys in the class. He
seemed to give grades based upon whether or not he liked you. He called
everyone by their last names, which we thought was rude. He would look at me,
ask a question, and say, " Willis." I would look back at him, and
wait for him to say a first name. More often than not, he would say, "
Roberta," and then she would answer his question. That seemed to frustrate
him a little. We thought he deserved it for not learning our first names. We
had him for three years, and he never
did figure them out! We never have looked alike.
Anyway, Dena Kopp was a lifelong
friend of ours who was also in that class. I don't remember who had the idea,
but we decided to see how many people we could get to yawn during German. All
three of us yawned as much as we could. Then we waited and watched. It wasn't
long before we had quite a few people yawning! Every time anyone would yawn,
the three of us would burst into laughter! Mr. Asmus knew we were up to
something, but he couldn't figure out what!
If our mother were alive, she
would call these stories "laughing places. " We think that she got
that phrase from the Disneyland attraction America Sings. She used to say that
everyone should have laughing places. As I have become more and more limited on
what I can do, I find myself enjoying and relying on those laughing places more
and more.
This weekend was wonderful because
Bryan, my brother, and Nathan, his son, visited. We enjoyed them so much! We
listened to Elder Uchtdorf's Priesthood
Session talk again. In it Elder Uchtdorf quoted President Abraham Lincoln as
saying that "most people are about as happy as they make up their minds to
be."
I think that has been the biggest
surprise to me about having ALS. When I control the things I think about and
keep my thoughts happy, I handle life better. Even though my body is shutting
down, I have so many blessings! Because of Jesus Christ, I have so much hope!
The assurance of continuing to live after I die is an incredible comfort to me!
I certainly don't want to give the
idea that I don't ever have down times, because I do. But I have learned that
praying like crazy, and then controlling what I allow myself to focus on
determine how I ‘endure’ the days I am blessed with!